as spoken by someone I love…”in living with bi-polar”

One of the most brilliant women I know wrote what I am about to share. She is one of those rare birds you come across in life who’s presence, creativity and nature is so unique that you just sit in awe of this creature who likes and respects YOU and even your ART…through the lens of that which I have yet to ever truly know, she sees the world, feels the world and I have learned fights the world in ways any of us should be privy to witness.

Yes, it’s strange to share this confession…it’s strange to share the struggles, especially when you know the whole story, from personal time with her…it’s strange to wonder if someone would judge…but, in the end, as only she could articulate, I believe this to be universally important to immerse ourselves in for a moment…I believe in her…I accept her as she has accepted me…I root for her and look up to her….
We all have pieces of this story within ours, as with most stories extreme and OTHERS, like a tapestry…like everything…
Peace, be you, Jake
_____________________________________________________________________

for the moment, I’ll keep my friends name anonymous…
“I’m not entirely sure why I’m broadcasting this. Maybe because it feels sort of anonymous, or maybe because I don’t have to look into your faces as I explain. Cowardly as that may seem. This could be fleeting, so I need to get it out, chances are pretty high I’ll delete it out of regret tomorrow anyway.
If I tagged you in this note its because you’ve been witness to me in the throws of my disorder, whether you knew it or not. I know those experiences must be frustrating and confusing at the least, so I guess I’m hoping this will serve as a little insight into what its been like for me to live this way.

I’ve had the symptoms of bi-polar disorder since puberty, it started out as mild depression and disassociation, it was chalked up to “low self-esteem” and dramatics. But through high school/into college it split more into recognizable depression vs. mania. I was officially diagnosed with Bipolar type 2 just out of high school. I’ve been on every medication out there, the ones that stabilized my moods were usually not worth the side effects. And thereapy was effective when I was able to get myself to go.
Living with bi-polar means always living in extremes: extreme energy, “joy” and speed. vs. extreme sadness, debilitating fear, loss of appetite, and pain.

At my worst extremes I suffer from hypomania to severe mania (I call them up-swings). sometimes for weeks at a time. I won’t eat or sleep for days. I’ll make impulsive decisions (like transferring from school in LA to Orange County only to transfer back six months later) I’m incredibly productive at work, a great salesperson, though self involved and often obnoxiously controlling. (because I’m convinced I’m always right) I talk faster and louder, I move quicker from thing to thing and I lose my hold on certain realities. For me, extreme manic episodes do not end until my body physically gives out (from hunger and sleep deprivation)

My depressive episodes (or down-swings) are more frequent, though typically shorter. Again I stop eating, but I will sleep for days if I’m able. I cry without notice and am so overcome with guilt that I convince myself I’m a burden on everyone in my life. (though to be honest, this symptom is prevalent with me 24/7 and even when I’m not depressed I find I have to remind myself that people actually DO want me around) my social anxiety disorder often keeps me from leaving my house, and under stress i suffer from Dermatillomania (compulsive skin picking) until my arms and legs are bleeding from tons of tiny little holes. I cry so much it becomes physically painful. Its harder for me to breath and my muscles and joints ache. my heart feels broken and I become so sad it hurts.

Some of these symptoms, like the self mutilation, have lessened for me over the years (mostly through self therapies like meditation) but some, like the social anxiety, have grown worse. For someone who used to be a performer and almost every aspect of the word I can’t even sing in front of my boyfriend and while I used to go to Disneyland every week now I have anxiety attacks in grocery stores.

The hardest thing for me is the guilt. At my lowest lows I cry praying someone will just hold me and rock me and protect me but the thought of burdening someone like that keeps me alone in those moments. (hell I’m crying now just sharing this because I know so many of you are going to respond with “you can call me anytime”s and I feel bad making you worry) Its a constant vicious cycle that I cannot seem to escape.

I fill my life with structure and work (sometime with work that makes me miserable) because it keeps me out of my head. I had the day off today and did (almost) nothing. Because of this I got lost in my own thoughts and I slipped into a downswing. I feel so horribly alone but the thought of someone else seeing me this way is mortifying. I’ll come out of it in a day or two, I’ve learned to live this way, I just wish it wasn’t so hard on others.

The whole reason I’m writing this is because I’m neglecting you. I haven’t talked to my best friends in months, yes I’m busy, but its more because I’m so full of shame and when you ask me how I am I don’t want to lie to you. I’ve been an absentee friend, and I know it frustrates you. You don’t deserve this, I love you and I’m sorry for it. I’m working on getting better about it, but please know I don’t do it on purpose.
I’m also writing this because I know a few of you are going through some really tough times. I want nothing more then to help you feel better but lately I’ve had to struggle to get out of bed every day. please know that I’m sending you my love and as soon as i am able I will give you the support you deserve.

Despite everything I am hopeful. I want what everyone wants; love and happiness and I’m willing to fight for it. I’m a lot more controlled than I used to be, I can recognize (usually) when I begin to swing one way or another and I can usually warn people ahead of time. I’m careful about what I eat and i still meditate regularly.Someday I’ll defeat this thing. I want to thank you all for your support, your love, and your patience. I hope this helped (at least a little bit) explain where I’m coming from or how I process. I’m so grateful that you are all in my life, though I am often awful about expressing it. Thank you. Thank you. Thank you.

H
2010

“Night has always pushed up day
You must know life to see decay
But I won’t rot, I won’t rot
Not this mind and not this heart,
I won’t rot.

And there will come a time, you’ll see, with no more tears.
And love will not break your heart, or dismiss your fears.
Get over your hill and see what you find there,
With grace in your heart and flowers in your hair.”

“After the Storm”- Mumford and Sons

For more info on Bipolar disorder visit: http://sharingbipolar.com/ ”

12 Responses to “as spoken by someone I love…”in living with bi-polar””

  1. H- thank you for sharing, although not easy, it is commendable that you are willing to share a part of yourself. It may not seem your story matters, but trust me when I say that your words can encourage and inspire many with such a difficult thing to live with such as Bipolar disorder. How can we use our own heartaches and challenges to help others when we sometimes feel we cannot get over them? Sharing, like you did, in an honest and very human way of humility. Wishing you the very best!
    ~ Angela

  2. Jake says:

    Yeah, she is brave and as she always does, caring enough to share for others to learn from and FEEL….you have no idea how special she is Angela….I’ll make sure she reads your words

  3. Byron McCauley says:

    Thank you for sharing those words. i struggle with bipolar everyday…have for years…and is a good feeling to know I am not alone. Thanks for you bravery. I wish you all the best

  4. Sabine says:

    H – You may think that it’s ‘cowardly’ the way you share your story.. but it’s not… I think it’s quite the opposite. How hard it must have been to work up the courage to write your story down…. I’m not sure if I could do that if I was in your situation..
    Your friends mean a lot to you – even being in the downswing you are not thinking about yourself in the first place – no the most important to you is how it could affect your friends.. that’s so much love you show.. I’m not sure if you realize that. Your friends will never think of you ‘being a burden’.. Just accept their help if you need it. It’s not easy I know but they love you too and they will be support you anyway they can..
    You are a fighter and I’m sure you will defeat it.

    Jake, thank you for sharing.

  5. Julie says:

    Thank you. I am bi-polar also. I have struggled since middle school only to finally figure out that I’m not depressed and crazy at the age of 29. I had to look at my life and see the insanity had a pattern. It is a struggle everyday, always afraid that the progress I made today will be destroyed by depression or a compulsive manic decision in a day or a week or a month from now. Thank you for making me feel not quite so alone in this.

  6. Brenda says:

    I admire Holly and her ability to live with who she is, and to know herself so well…this was a very eye-opening read for me. I can see a lot of you in me, the one I keep hidden…You are very brave and a strong woman. Thank you for sharing this.

  7. Thank you for sharing your story. You help others by coming forward. Depression is more common than you think. It makes me angry that people who suffer from depression are made to feel ashamed to admit that they have a disease. It needs to be brought out in the open so others especially men who suffer in silence won’t be afraid and feel guilty. You are not a burden. So many people I know and in my life suffer from this disease. My Mom, My sis, my ex-partner and my dear friend who wrote this 2 years ago which I share with you so maybe others who feel the same way will know that they are not alone. I’m happy to tell you that my friend is still with us and we have shared some great times since. But still, it’s a constant battle for him.
    DEPRESSION
    Life is never good for me and this is what I wish you’d see.
    It is like a mind-controlling disease.
    It makes you feel worthless and unknown.
    It has no mercy, whispering in your ear that
    life has no meaning.
    It tells you no one cares and why go on.
    It makes you feel like you have no purpose.
    You want to run and hide but you know it is
    close behind following you no matter how hard you try to escape.
    It tells you lies and says nasty things to
    you.
    It makes you feel empty inside.
    It takes a part of you away so you feel
    incomplete.
    This so called disease is called depression.
    Just let me end it all for I’ll be happy in the end, I’ll finally be free.
    Free from all the pain and torment and the never ending battle.
    You just need to know I love you but couldn’t handle it anymore.
    I just hope your not crying, I want you to know everything will be ok.
    I’ll be watching over you and listening to what you have to say.
    Know that I love you and always have but I need to think of me right now and so I say goodbye.
    So stop your weeping and know this was the best thing for me
    It was my time to go, your time to set me free.

  8. Holly says:

    Thanks everyone, for your comments and encouragement. When I wrote this, it was out of a feeling of guilt, during a downswing. I never thought it would reach so many people. It is good to feel support from everyone though and to know that I have friends like Jake who I know are always there for me, even when I’m unable to ask for it. Much Gratitude.
    -Holly

  9. I was wondering if you ever considered changing the layout of your blog? Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so people could connect with it better. Youve got an awful lot of text for only having one or two images. Maybe you could space it out better?

  10. Paxil says:

    I added your blog to bookmarks. And i’ll read your articles more often! Before this, it would be possible for the government to arrest you just based on whatever you were saying, if they didn’t like it.

  11. Strattera says:

    There are certainly a lot of details like that to take into consideration. That is a great point to bring up. I offer the thoughts above as general inspiration but clearly there are questions like the one you bring up where the most important thing will be working in honest good faith. I don?t know if best practices have emerged around things like that, but I am sure that your job is clearly identified as a fair game.

  12. Keflex says:

    What I want to know is why I should care? I mean, not to say that what youve got to say isnt important, but I mean, its so generic. Everyones talking about this man. Give us something more, something that we can get behind so we can feel as passionately about it as you do.

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